Created by a cancer survivor, the app has been built with an in-depth understanding of cancer patients’ practical and emotional needs. The new podcast recounts its development and the founder’s personal journey.
More details can be found at https://devinthorpe.substack.com/p/how-one-persons-cancer-journey-could?token=eyJ1c2VyX2lkIjo4ODIxOTQ3NiwicG9zdF9pZCI6NTQxNzg0MzAsIl8iOiJyOFYwbyIsImlhdCI6MTY1MjQzNDM0MCwiZXhwIjoxNjUyNDM3OTQwLCJpc3MiOiJwdWItMzc1NDcxIiwic3ViIjoicG9zdC1yZWFjdGlvbiJ9.jtG5UiKM_1F16Y2fEVb0Q9IL2Ge57mq6FvQa1pkPnzw&utm_source=substack&utm_medium=email&s=r#play
In the recently released interview, Paoola Sefair explains how the app supports both cancer patients and their family, friends, and colleagues. It allows patients to reclaim a sense of control and agency. For friends and family, it demystifies how they can best support their loved one, be it a patient or a caregiver.
A National Center for Biotechnology Information report describes that despite substantial progress in modern cancer detection and treatment, many patients experience a lack of support for their psychological, emotional, and social needs. The app provides a much-needed solution to fill the gap in cancer care.
It enables patients to build a support network, known as a ‘CareCrew’. Patients can send requests when they need help for specific tasks like grocery shopping, or services such as transportation. CareCrew members can also give details of the type of help they can offer.
A wishlist can be created by patients for items they need or experiences they wish for, like a friend to accompany them for an activity. A wellness tracker enables them to monitor their symptoms and mood. Patients have full control over app invitations, accepting or declining help and how they share their information. The app is available in both Android and Apple stores. It is free to use and does not include any advertising.
Following her own 5 year cancer journey, Paoola Sefair was designated as the care coordinator for her friend whose cancer had reoccurred. The experience opened discussions with other cancer patients, and cultivated greater understanding of the patient-supporters relationship. This sparked the development of the ‘My CareCrew’ app.
When asked in the interview how she would describe her superpower, Paoola replied that it is the ‘need to use her skills and experience in service to others’.
Podcast host Devin Thorpe is an author, speaker, and Forbes magazine contributor. He is the founder of Superpower for Good which champions changemakers and those doing social good.
A spokesperson for the app said: “My CareCrew has been designed to make difficult conversations easier so that patients get the help they really need, and friends have meaningful opportunities to provide needed support.”
Interested parties can find more information at https://devinthorpe.substack.com/p/how-one-persons-cancer-journey-could?token=eyJ1c2VyX2lkIjo4ODIxOTQ3NiwicG9zdF9pZCI6NTQxNzg0MzAsIl8iOiJyOFYwbyIsImlhdCI6MTY1MjQzNDM0MCwiZXhwIjoxNjUyNDM3OTQwLCJpc3MiOiJwdWItMzc1NDcxIiwic3ViIjoicG9zdC1yZWFjdGlvbiJ9.jtG5UiKM_1F16Y2fEVb0Q9IL2Ge57mq6FvQa1pkPnzw&utm_source=substack&utm_medium=email&s=r#play
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